The impact of rare diseases on health related quality of life
- At: Glasgow (Scotland) (2018)
- Type: Poster
- Poster code: POS-APS-088
- By: ABBAS, Amar (University of Malta)
- Co-author(s): Amar Abbas
Janis Vella Szijj
Anthony Serracino-Inglott - Abstract:
Background
Over 80% of Rare Diseases (RDs) are genetic and appear early in life, resulting in a 30% mortality in children diagnosed before their fifth birthday. RDs are chronic and result in a decreased Quality of life (QOL)
Methods
A self-administered Health Related QOL Assessment tool was created, validated by seven experts, and published online... The access to the whole abstract and if available the presentation file is available to FIP members and to congress participants of that specific congress.
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Last update 28 September 2023